Privacy Policy

Last Updated: June 14, 2021

Our privacy policies, statements, and notices explain how personal data is processed by Alnylam Pharmaceuticals and its worldwide affiliates.

Website Privacy Policy

This website is owned and operated by Alnylam Pharmaceuticals, Inc. (“Alnylam”, “we”, “our” or “us”), a company established under the laws of Delaware with registered offices at 675 W Kendall Street, Cambridge, MA 02142 USA, Tel: 617.551.8200, Fax: 617.551.8101, e-mail: info@alnylam.com.

Please note that Alnylam UK Limited is an affiliate of Alnylam Pharmaceuticals, Inc. To learn more about Alnylam and its worldwide presence and how to contact Alnylam’s affiliates directly please visit our corporate website at www.alnylam.com/contact-us/.

Alnylam respects the privacy of visitors to our website. This privacy policy describes:

the types of personal data we collect about visitors to the website;
how we use the personal data and with whom we share it;.
the measures we take to safeguard the personal data we collect; and
your rights concerning your personal data.

This website privacy policy only applies to personal data collected through this website by Alnylam or by third parties acting on our behalf. It does not describe the ways in which we collect or use personal data obtained offline or of any other third party collecting and processing personal data through this website independently.

Our Data Protection Officer may be contacted at: eudataprivacy@alnylam.com

For information on the collection, use and processing of personal data of Healthcare Professionals by Alnylam read the specific Privacy Notice for Healthcare Professionals (General Use)

For more information on the collection, use and processing of your personal data for electronic communications purposes, read the specific Data Privacy Notification and Consent Form for electronic communications

For more information on the collection, use and processing of your personal data for the purpose of direct marketing/e-mail communication, read the specific Direct Marketing / Email Communications Notice

For more information on the collection, use and processing of your personal data collected at congresses, read the specific Data Privacy Notice for Use of personal data Obtained at Congresses, Symposia and other Events

For more information on the collection, use and processing of your personal data for the purpose of recruitment, read the specific Alnylam Pharmaceuticals Recruitment Privacy Notice

What personal data do we collect and where do we obtain it from?

We collect very limited personal data from you on our website. Specifically, we collect your email address if you ask us to send you news and other updates, and information you provide when you contact us via the website with enquiries and comments. We use cookies or other online tracking technologies to collect information automatically about your use of the website, see the “Cookies Notice” section below for more information.

The categories of information we may collect, therefore, include the following:

your name, email address and other contact details you provide;
information you provide related to an enquiry;
records of your correspondence with us, if you have contacted us; and
information collected automatically using cookies and other tracking technologies, such as details of the web pages you have visited on our website and the content that you access.

How we use your personal data and on what basis

Depending on how you use the website, your interactions with us and the reasons for which you provide your information, we will use your personal data for the following purposes:

to respond to your inquiry;
to provide you with information that you have requested (such information may either relate to our products or services or consist of up-to-date disease awareness information) in the form of sending of newsletters or similar;
to bill you for products and services you have requested;
to market products and services which we think are of interest to you, or to communicate with you for other purposes which are evident from the circumstances or about which we inform you when we collect personal data from you.
to monitor our regulatory compliance;
to compiling profiles and personal data about you in order to identify suitable; education/awareness programs or suitable opportunities to collaborate with you;
to evaluate the effectiveness of this website;
to provide you with technical support;
to comply with legal obligations;
to promote security to protect against and prevent fraud, claims, and other liabilities; and
any other purpose about which we provide notice at the time we collect your personal data.

We will only process your personal data for the purposes outlined above if we have established a “legal basis”.

The legal basis will depend on the purposes for which we have collected and use your personal data. In almost every case the legal basis will be one of the following:

where we have your consent to our use of your personal data;
when the processing is necessary for our legitimate interests, to ensure that our products and services are properly provided and to promote our products and services; or
where we are subject to a legal obligation and need to use your personal data in order to comply with that obligation.

Who we share your personal data with

We will disclose your personal data to:

other Alnylam affiliates worldwide;
third parties who act on our behalf, for further processing in accordance with the purpose(s) listed above;
a third party in the event that the business of this site or a part of it and the customer data connected with it is sold, assigned or transferred;
a third party if we are required, or permitted, to do so because of an applicable law, court order or governmental regulation, or if such disclosure is otherwise necessary in support of any criminal or other legal investigation or proceeding here or abroad; and
our professional advisors and auditors.

Your Privacy Rights

Whenever we process personal data concerning you, we take reasonable steps to ensure that your personal data is kept accurate and up-to date for the purposes for which it was collected.

You can withdraw your consent for certain processing at any time by clicking “Unsubscribe” on any communication you receive from us or by contacting us using the contact details set out above.

Depending on which country you are in and subject to some exceptions, you may have the right,

to ask us about the processing of your personal data, including to be provided with a copy of your personal data held by us;
to request the correction and/or deletion of your personal data, or restrict or object to the processing of your personal data; and
to have the personal data we hold about you erased.

If you wish to contact us to exercise any of your rights, please complete this Data Subject Request form or email us at privacy@alnylam.com and, in case you are a EU/EEA resident, please email us at EUdataprivacy@alnylam.com or as specified in the “For Additional Information” section below.

We may require evidence of your identity or to be provided with additional information before we are able to handle your request.

If you have a complaint about how your personal data is handled, please raise it with us in the first instance and we will take appropriate steps to address your concern. However, please note that you have the right to lodge a complaint with the applicable Supervisory Authority if you are a European resident. A list with the Supervisory Authorities in Europe and their contact details is available here: https://edpb.europa.eu/about-edpb/board/members_en.

Data Transfers

We transfer personal data to countries other than the country in which the personal data was originally collected which may not have the same level of data protection as your country. When we transfer your personal data to such other countries, we take the measures required by law to ensure the protection of your personal data. These measures may include data transfer agreements implementing standard data protection clauses.

Data Retention

Your personal data will be retained by Alnylam for the intended purposes in accordance with applicable data protection laws and company policies. Once your personal data is no longer needed, it will be promptly deleted or anonymized in accordance with Alnylam’s policies. For more information about the retention periods we apply to personal data please contact us at: eudataprivacy@alnylam.com.

Cookies Notice

Periodically, some pages on this website use “cookies,” which are small files that the website places on your hard drive for identification purposes. These files are used for website registration and customization of your next time visit to our website.

In order to accept all of our cookies or to customize your cookie preferences, or If you require further information on how we use cookies in our website, visit our Cookie Policy.

Our Children’s Policy

We are committed to protecting the privacy of children. You should be aware that this website content and services are not intended for, or designed to attract, children under the age of 18. No personal data should be submitted to Alnylam through the website by visitors who are less than 18 years old. If it comes to our attention that an under 18 user of this website has volunteered personal data and/or health-related personal data, or that a healthcare professional has volunteered personal data about a patient who is identified as younger than 18, without the given or authorized consent of the holder of parental responsibility over such child, we will promptly, upon relevant notification or request, delete such personal data in accordance with our deletion policy.

Privacy Policy Updates

Alnylam may, at any time, revise this privacy policy by updating this posting. If we make revisions to this privacy policy, we will update the date at the top of this privacy policy.

For Additional Information

If you have any questions about this privacy policy, or concerns about the practices of this website, or your dealings with this website or any privacy-related matter in general, please email us at privacy@alnylam.com or contact us in writing at:

For residents in the EU/EEA:

Alnylam’s Representative in the Union can be contacted by email at eudataprivacy@alnylam.com. You can also contact us in writing at:

Alnylam Netherlands B.V.
Antonio Vivaldistraat 150
1083 HP Amsterdam, Nederland
info@alnylam.nl
Tel: 0800 403 0002 / 020 3697850

Alnylam’s EU Privacy Office and the designated Data Protection Officer can also be contacted by email at EUdataprivacy@alnylam.com.

You may also contact us in writing at:

ALNYLAM UK LTD.
Braywick Gate
Braywick Rd
Maidenhead
SL6 1DA, UK
Tel: +44 (0) 1255 444 400

ALNYLAM Switzerland GmbH
Attention: Legal department
Grafenauweg 4
6300 Zug
Switzerland

For any other questions or concerns, regardless of place of residence, please email us at info@alnylam.com or contact us in writing at:

Alnylam Pharmaceuticals, Inc
Attention: Privacy Officer
675 W Kendall Street
Cambridge, MA 02142 USA
Tel: 800.231.8685

Privacy Notice for Healthcare Professionals (General Use)

Alnylam Pharmaceuticals and its Affiliates (‘Alnylam’, ‘we’, ‘our’, or ‘us’) is committed to protecting your privacy and your personal data.

This Privacy Notice (“Notice”) applies to the personal data that we process about Health Care Professionals (“HCPs”) and employees/representatives of Healthcare Organizations (“HCOs”).

Data controller and Data Protection Officer (“DPO”)

Each Alnylam entity is acting as a data controller for the purposes of this Notice when processing your personal data. You can find more information on Alnylam affiliates in Europe and worldwide as well as their establishment and contact details here: http://www.alnylam.com/contact-us/.

Alnylam EU Privacy Office and the designated Data Protection Officer (DPO) are responsible for supervising and monitoring Alnylam’s compliance with applicable EU data protection laws and regulations when processing your personal data.

Alnylam EU Privacy Office and the appointed DPO can be contacted at eudataprivacy@alnylam.com.

Personal data Alnylam Collects and Stores

The types of personal data Alnylam collects depend on your relationship with and applicable law. It may include the following:

basic personal details such as identity and contact information (e.g. your name, postal and e-mail address, telephone and mobile phone numbers);
educational and professional details such as qualifications and organizational or institutional affiliations (e.g. title, field of expertise, medical specialty, publications, interests in Alnylam products and your general treatment habits);
economic and Financial and Payments related information, where necessary.

This information may come directly from you or from public or third-party information sources (such as from third-party service providers providing health care professional data and related services).

To better understand and address your interests, and to ensure that the personal data that Alnylam maintains and processes about you is accurate, Alnylam may correct or add to any personal data you provided directly to Alnylam with personal data relating to you that Alnylam receives from other third-party sources, such as social media networks e.g. LinkedIn and professional databanks e.g. Veeva Open Data.

How Alnylam Uses your personal data and on what legal basis

Alnylam processes personal data about you for one or more of the following purposes: 

to perform Alnylam’s obligations under a contract to which you are a party;
to comply with applicable laws or regulations;
to publicly disclose any transfers of value made to you, as a HCP, as required by law or in order to comply with applicable industry standards;
to provide you with corporate information on Alnylam;
to provide you with promotional information on Alnylam branded products and services and to carry out promotional activities to you;
to provide to you, on your request, medical and scientific information and updates;
to handle adverse events reports or quality complaints;
to send to you invitations to promotional or scientific events e.g. webinars or send you CME invitations;
to invite you to share your professional insights with Alnylam;
to participate in surveys and market research activities; and/or 
to collect and analyze your interests and professional experiences to improve our profile of you as an HCP, including by inferring insights, to provide you with targeted advertising e.g. scientific updates to further enhance the business relationship we have with you (this profile may include your age and gender, medical specialty and prescription habits).

We will only process your personal data if we have established a “legal basis”.

The legal basis will depend on the purposes for which we have collected and use your personal data. In almost every case the legal basis will be one of the following:

where we have your consent to our use of your personal data;
when the processing is necessary for our legitimate interests, to ensure that our products and services are properly provided and to promote our products and services; or
where we are subject to a legal obligation and need to use your personal data in order to comply with that obligation.

With Whom Alnylam Shares your personal data

Alnylam may disclose personal data about you to:

other Alnylam affiliates worldwide
third parties who act on our behalf, for further processing in accordance with the purpose(s) listed above;
a third party in the event that the business of this site or a part of it and the customer data connected with it is sold, assigned or transferred (in which case we would require the buyer, assignee or transferee to treat personal data in accordance with this privacy policy);
a third party if we are required, or permitted, to do so because of an applicable law, court order or governmental regulation, or if such disclosure is otherwise necessary in support of any criminal or other legal investigation or proceeding here or abroad; and
our professional advisors and auditors.

Where Alnylam transfers your personal data

Your Rights and How to Exercise Them

Individuals in the EU have certain data subject rights which may be subject to limitations and/or restrictions. These rights include the right to: (i) request access to and rectification or erasure of their personal data; (ii) restrict processing, or to object to processing of their personal data; and (iii) the right to data portability. If you wish to exercise one of these rights, please refer to the “How to Reach Us” section below.

You also have the right to ask Alnylam not to process your personal data for marketing purposes. Alnylam will usually inform you (before collecting your data) if it intends to use your data for such purposes or if it intends to disclose your information to any third party for such purposes. You can exercise the right to prevent such processing by informing Alnylam at any time that you do not wish to receive such marketing. Where you wish to exercise this right please refer to the “How to Reach Us” section below.

How long Alnylam Retains personal data

For marketing purposes, including any profiling for direct marketing, we will keep your personal data for as long as you want to receive marketing from us. If you decide to opt-out of or withdraw your consent to our marketing, we will no longer use your personal data for this purpose and we will suspend your HCP account for marketing purposes. If the data is not needed for some other purpose (e.g. to carry out our customer relationship), we will delete the data without undue delay or anonymize it as practically possible.

How to Reach Us

For further details on how Alnylam collects and processes your personal data please read the relevant section in this Privacy Policy.

You may also reach us via email us at privacy@alnylam.com or contact us in writing at:

Alnylam Pharmaceuticals, Inc
Attention: Privacy Officer
675 W Kendall Street
Cambridge, MA 02142 USA
Tel: 844.543.8355

EU/EEA residents For the access, rectification, deletion and restriction of processing and to exercise the right of withdrawal or any other right about the processing of your personal data, or if you feel that any of your rights relating to the collection or use of your personal data have been violated, you may contact our EU Privacy Office at:

ALNYLAM UK LTD.
Braywick Gate
Braywick Rd
Maidenhead
SL6 1DA, UK
+44 (0) 1255 444 400

EU Privacy Office 
ALNYLAM Switzerland GmbH
  Attention: Legal department 
Grafenauweg 4 
6300 Zug 
Switzerland 
Tel: +41 41 561 3500
  e-mail: EUdataprivacy@alnylam.com

You may also complete this Data Subject Request form

Data Privacy Notice and Consent Form for Use of Your personal data for Electronic Communications Purposes

Data Controller and Data Protection Officer (“DPO”)

Alnylam Pharmaceuticals Inc. in the US (“Alnylam”) will act as a data controller of your personal data, meaning that it will determine the purposes and means of how it is processed.

Alylam’s DPO can be contacted by email at EUdataprivacy@alnylam.com.

You may also contact the DPO in writing at:

ALNYLAM UK LTD.
Braywick Gate
Braywick Rd
Maidenhead
SL6 1DA, UK
Tel: +44 (0) 1255 444 400

ALNYLAM Switzerland GmbH
Attention: Legal department
Grafenauweg 4
6300 Zug, Switzerland

Types of personal data

Alnylam will process the following personal data as applicable: Your contact details, including your name, address, e-mail address, country (altogether “personal data”)

Purposes of Use of your personal data

Alnylam shall use your personal data to send you non-customized email communications in relation to Disease Awareness information in the disease area(s) of your choice.

Disclosures of your personal data

We will disclose your personal data to:

other Alnylam affiliates worldwide;
third parties who act on our behalf, for further processing in accordance with the purpose(s) listed above;
a third party in the event that the business of this site or a part of it and the customer data connected with it is sold, assigned or transferred;
a third party if we are required, or permitted, to do so because of an applicable law, court order or governmental regulation, or if such disclosure is otherwise necessary in support of any criminal or other legal investigation or proceeding here or abroad; and
our professional advisors and auditors.

Our legal basis for processing and disclosing your personal data

We will only process and disclose your personal data for the purposes outlined above if we have established a “legal basis”.

In almost every case the legal basis will be one of the following:

where we have your consent to our use of your personal data – this is legal basis for us sending you the email communications described above
when the processing is necessary for our legitimate interests; and
where we are subject to a legal obligation and need to use your personal data in order to comply with that obligation.

Where Alnylam transfers your personal data

We transfer personal data to countries other than the country in which the personal data was originally collected, which may not have the same level of data protection as the your country. When we transfer your personal data, we take the measures required by law to ensure the protection of your personal data . These measures may include data transfer agreements implementing standard data protection clauses.

Data retention

Your personal data will be reviewed after a 5-year period to ensure your active participation in the receipt of information about your selected disease area(s) of interest. If you would like your data to be deleted prior to the 5-year period, please contact privacy@alnylam.com.

Exercise of Your rights

You can withdraw your consent at any time by clicking “Unsubscribe” on any communication you receive from us or by contacting us using the contact details set out above. Depending on which country you are in and subject to some exceptions, you may have the right:

to ask us about the processing of your personal data, including to be provided with a copy of your personal data held by us;
to request the correction and/or deletion of your personal data, or restrict or object to the processing of your personal data; and
to have the personal data we hold about you erased.

If you wish to contact us to exercise any of your rights, please complete this Data Subject Request form or email us at privacy@alnylam.com and, in case you are a EU/EEA resident, please email us at EUdataprivacy@alnylam.com or as specified in the “For Additional Information” section below.

We may require evidence of your identity or to be provided with additional information before we are able to handle your request.

Direct Marketing / Email Communications Notice

You can elect to receive email updates about developments regarding Alnylam’s products and/or services or about health-related specific topics (e.g. to receive email updates about hereditary ATTR amyloidosis from Alnylam) by completing the relevant electronic form on our website.

If you decide, at any later time, that you no longer wish to receive such email communications from us, you can unsubscribe to any such contact list by using the relevant “Unsubscribe” link within the email, or by sending us an email entitled “Unsubscribe from email updates about hATTR amyloidosis” at privacy@alnylam.com.

Data Privacy Notice for Use of Personal Data Obtained at Congresses, Symposia and other Events

If you attend congresses or any other events where Alnylam participates as a sponsor and/or exhibitor, Alnylam authorized personnel may ask you if you would like to receive a follow-up from us, either by phone or email.

A quick way for us to obtain your contact information to do this will usually be for the Alynlam authorized personal to scan your badge. We will then receive your contact information (such as name, surname, address, e-mail address, phone numbers, medical specialty) and will ensure that an Alnylam representative follows up with you.

The scanning of your badge is voluntary; you are not required to agree to it and it will not affect your participation to the event or any specific session. If you choose at the time to consent to the scanning of your badge, you are able to withdraw your consent at any later time, without giving any reason, by contacting us at privacy@alnylam.com or is you are a resident of Europe at eudataprivacy@alnylam.com.

Once we have followed up with you, we may ask you if you would like us to provide you with information about Alnylam’s medicinal products and services, medical and scientific research updates and/or about educational opportunities, that might be of interest to you, as well as to invite you to relevant promotional activities as further described in the specific Privacy Notice for Healthcare Professionals (General Use).

Recruitment Privacy Notice

This Privacy Notice was last updated on March 4th, 2019.

"Alnylam " means Alnylam Pharmaceuticals Inc and any of its subsidiaries and affiliates. Alnylam is also referred to in this Notice as "we", "us" or "our". You can contact us at privacy@alnylam.com for a list of all other Alnylam entities.

For the purposes of this notice Alnylam is the data controller.

Purpose

The Notice provides you with ("you" or "your”) information regarding how we handle, process and protect your personal data, in connection with our recruiting process as well as informing you of the rights that you have under data protection law. Please read this Notice carefully prior to providing your personal data to Alnylam.

As used in this Privacy Notice, “personal data” means information that identifies job applicants and potential candidates for employment with Alnylam, either submitted as part of the online application and/or through alternative recruitment channels (e.g., via social channels, professional recruiting firms or thorough our Employee Referral Scheme).

An updated list of recruiting agencies and other third-party sources, providing Alnylam personal information on job applicants and potential candidates, can be available to you upon submission of a relevant request via e-mail at privacy@alnylam.com.

We will process your personal data in accordance with this Privacy Notice, unless such processing conflicts with the requirements of applicable data protection laws, in which case, applicable data protection laws will prevail.

Legal Basis for Processing

Alnylam must have a legal basis for processing your personal information. The legal basis for processing varies for the different types of personal information we collect, process and disclose. Most commonly, the conditions for processing your personal information in relation to recruitment will be one of the following:

Consent - You have given your consent for the processing to take place e.g. contacting and disclosing information to a referee or for pre-employment screening where applicable
Legitimate interests - the processing is necessary for our legitimate interests or the legitimate interests of a third party e.g. to process and assess your application for employment with us.

Where we have relied on your consent as the legal basis for processing your personal information, you have the right to withdraw your consent at any time. For further information on how to withdraw your consent please see the “Your Rights” section.

The Information we collect

The types of personal data that we request from you and the ways that we process it are determined by the requirements of the country in which the position is located, and not the country in which you reside. Should you apply to more than one location or should the role to which you apply be available in more than one country, the types of personal data we request from you and the ways that we process it are determined by the requirements of all the countries in which the position is located.

We usually collect personal data directly from you when you apply for a role with us, such as your name, address, contact information, work and educational history, achievements, test results and other relevant information from your Curriculum Vitae (CV). We also may collect personal data about you from third parties, such as your references, prior employers, and Alnylam employees with whom you have interviewed. We may also collect and process your personal data from publicly available social media profiles e.g. Facebook, LinkedIn. Finally, we collect and store login and password details for your online account.

Sensitive personal data is a subset of personal data and includes ethnicity, health, trade union membership, philosophical beliefs, sexual orientation, as well as other categories as allowed by law. We do not seek to obtain and will not collect such data about a candidate unless permitted or required to do so by applicable laws (e.g., government reporting in the US).

We encourage you to exclude any sensitive personal data in your application including in your cover letter. Should you voluntarily provide such information, this information will be processed in accordance with applicable data privacy and data protection laws and our standard business practices.

How we use your personal data

We collect and use your personal data in connection with your application for employment:

identifying and evaluating candidates for potential employment, as well as for future roles that may become available;
supporting and processing your application, for example, so we can assess your ability to meet the specification,
to verify references and professional qualifications provided by applicants;
evaluating and assessing the results of interviews;
record keeping in relation to recruiting and hiring;
carrying out pre-employment screening, that is appropriate and proportionate to the nature of the job function, subject to specific local regulations;
protecting our legal rights to the extent authorized or permitted by law; or
Being contacted by us or our recruitment partners via the details you have provides us in relation to your application

We may also analyse your personal data or aggregated/anonymised data to improve our recruitment and hiring process and augment our ability to attract successful candidates.

Automated Decision Making

We do not make recruiting or hiring decisions based solely on automated decision-making.

Who we share your data with

Within Alnylam - We restrict access to your personal data to people within Alnylam who “need to know” that information, e.g. the individuals who will process your job application and manage the recruitment process working in the country where the position for which you are applying is based, as well as by recruiters and interviewers working in different countries within the Alnylam global organization.
Outside Alnylam - Alnylam shares your personal data with trusted third-party providers, in order to manage recruitment, notably to conduct screening and verification of your application and the information you provide, e.g. academic/professional qualifications, where necessary and applicable.

Generally, Alnylam will only disclose your personal data to other third parties:

when required to do so by law;

in response to a legitimate request for assistance by the police or other law enforcement agency; and
to seek legal advice from Alnylam’s external lawyers or in connection with litigation.

International Transfers

In the case of any cross-border data transfer e.g. the transfer of your personal data to countries other than the one in which you reside, Alnylam shall ensure that appropriate data safeguards are in place to ensure an adequate level of data protection as the one provided in the European Union through the use of appropriate contractual arrangements with third-party recipients established in third countries; in particular, Alnylam shall execute with such third-party recipients the appropriate EU Standard Contractual Clauses for cross-border data transfers from the EU to controllers or processors in third countries, as adopted by the European Commission.

Please note that the data protection laws of such third countries may not be equivalent to those in the country where you reside.

Data Retention

If you accept an offer of employment by Alnylam, any relevant personal data collected during your pre-employment period will become part of your personnel records and will be retained in accordance with specific country requirements and internal policies and procedures.

If your application is unsuccessful, we will hold your personal data on file for the purpose of system administration and reporting purposes and to consider you for potential future roles and employment opportunities. This will be for a period which may vary depending on the country but will not exceed a period of 2 years or 1 year for EU citizens.

At the end of such period we may ask you to renew your consent and provide you an opportunity to update your personal data. If you accept, the retention period shall be extended, otherwise your data will be safely and permanently deleted from our records, in accordance with our data retention policy and schedule.

Your rights

You have certain rights in relation to personal information we hold about you. Details of these rights and how to exercise them are set out below. We will require evidence of your identity before we are able to act on your request.

Right of Access - Access to the personal data we hold about you, free of charge in most cases.
Right to Rectification - The correction of your personal data when incorrect, out of date or incomplete.
Right to Erasure - The deletion of the data we hold about you, in specific circumstances; for example, when you withdraw consent or object, and we have no legitimate overriding interest, or once the purpose for which we hold the data has come to an end.
Right to Data Portability - A computer file in a common format (CSV or similar) containing the personal data that you have previously provided to us, and the right to have your information transferred to another entity where this is technically possible.
Right to object to or restrict processing - Restriction of the use of your personal data, in specific circumstances, generally while we are deciding on an objection you have made.
Right to Object - That we stop processing your personal data, in specific circumstances; for example, when you have withdrawn consent, or object for reasons related to your individual circumstances.
Rights in relation to automatic decision making and profiling - Review of any decision made based solely on automatic processing of your data (so where no human has yet reviewed the outcome and criteria for the decision).

If you would like to exercise any of the above rights or make a request to access, review, or correct the personal data we have collected and hold about you, or to receive further information on how we process your personal data, please contact us at privacy@alnylam.com.

Children’s Policy

We are committed to protecting the privacy of children. You should be aware that our recruitment site is not intended for, or designed to attract, children under the age of 16. No information should be submitted to Alnylam through the web site by visitors who are less than 16 years old. As noted above, we do not collect personally identifiable information unless you provided it to us including an individual’s age.

Your California Privacy Rights

California Civil Code Section 1798.83 entitles California customers to request information concerning whether a business has disclosed personal information to any third parties for the third parties’ direct marketing purposes. As stated in our Privacy Policy, Alnylam will not sell or share your personal information with anyone other than our research and/or development partners or agents and will not sell or share your personal information with anyone for their direct marketing purposes. California customers who wish to request further information about our compliance with this law or have questions or concerns about our privacy practices and policies may contact us as at privacy@alnylam.com.

Cookies and other tracking technologies

Alnylam does not track its users over time and across third party websites and therefore does not respond to Do Not Track (DNT) signals. Alnylam does not authorize third parties to collect Personal Data directly from our users on our web site, such as through the use of third party advertisements.

You can learn more about our use of Cookies and other tracking technologies by reading our Privacy Policy as well as our Cookie Policy.

Contact Us

If you have any enquires or if you would like to contact us about our processing of your personal information, including to exercise your rights as outlined above, please contact us at privacy@alnylam.com.

The Right to Complain

If you have any concerns or complaints regarding the processing of your personal data, or our compliance with the EU General Data Protection Regulation (GDPR), you can contact Alnylam’s Data Protection Officer Arianna Sekeri at EUdataprivacy@alnylam.com.

Contacting the Regulator

EU residents also have the right to lodge a complaint with the with the competent data protection authority, contact details of which can be reached at the following link: https://edpb.europa.eu/about-edpb/board/members_en.

Alnylam reserves the right to modify this Privacy Notice. We will post any changes made to our Privacy Notice on this page. Please check this page regularly to keep up-to-date.

Social Media Monitoring Privacy Notice

Scope

Alnylam Switzerland GmbH , together with its Affiliates (‘Alnylam’, ‘we’, ‘our’, or ‘us’) wants to understand how social media users discuss about diseases and medicinal products and services relevant to the Alnylam brand, so that we can take into account the needs of the general public in our communications and business plans. From time to time, we analyse social media activity related to our brand and monitor the use of our own social media channels. The conclusions drawn from the analysis will help shape Alnylam’s business plans and communication strategy. Alnylam is strongly committed to protecting your privacy, and will make all reasonable efforts to protect your personal data (“Personal Data”) in accordance with applicable data protection laws and regulations and this Privacy Notice (the “Notice”).

Data Controller and Data Protection Officer (“DPO”)

Alnylam is the Data Controller for the processing of Your Personal Data for the purposes of this Notice. You can find more information on Alnylam affiliates in Europe and worldwide as well as their establishment and contact details here: http://www.alnylam.com/contact-us/

Our Alnylam EU Privacy Office and the designated Data Protection Officer (DPO) can be contacted by email at: eudataprivacy@alnylam.com

Personal Data Alnylam Collects and Source

We monitor publicly available media including social media data, using commercially available media monitoring tools. The data we obtain from monitoring efforts is used to better understand public discussions and needs regarding diseases and medicinal products and services relevant to Alnylam brand.

We use an external service provider to process and analyse public social media data (social media monitoring activities) on our behalf and according to our documented instructions, in compliance with applicable laws and regulations.

To carry out the processing, Alnylam may use for example, commercially available social media monitoring tools such as the one provided by Sprinklr, Inc. a US-based company with offices at 29 West 35th Street, New York, NY 10001, USA; please review Sprinklr’s privacy policy to understand how Sprinklr collects and processes your personal data: https://www.sprinklr.com/privacy

Processed data may include the following categories of personal information:

Identification data (name, username, user identification and geographical area);
personal characteristics (age, gender and family status);
consumer habits;
hobbies and interests;
professional and educational background;
pictures and videos;
any other information published on a website that is analysed or on a third-party platform.

The external provider collects, analyses and monitors through media monitoring tools data from public posts (conversation streams and publicly available opinions, statements or other interactions and content) by social media users on different social media channels (such as Instagram and Facebook), and tracks different online sources including forums, blogs and online news websites.

The data gathered through the media monitoring tools may include social media handles and content from posts which are exclusively made publicly available by the social media users themselves.

The data collected by the service provider via the media monitoring tools is used to create insight reports, which are then shared with Alnylam. These reports aim to gain insights in conversation trends over a specified period of time and not to identify specific individuals.

Insight reports will be anonymized and will not include any personal data gathered from media monitoring. However, individual quotes with personal information may be captured as examples and used to describe the general attitude towards Alnylam in social media and/or for monitoring/audit purposes. These quotes will be limited to those of individuals who publish posts about the Alnylam in their professional capacity (e.g. HCPs or representatives of patients’ associations) or those of patients’ ambassadors.

We do not actively collect sensitive personal data, but we may process such data in monitoring social media, where such data is included in social media posts solely for purposes linked to safety and quality surveillance and reporting as required by applicable laws and regulations.

We have set up strict limitations on the topics we monitor and have ensured that our personnel, when accessing and using the external’s provider’s database, is bound by clearly documented instructions and confidentiality obligations.

Lawfulness of Processing

The lawful basis for processing your Personal Data is Alnylam’s legitimate interests to protect its assets and its brand on social media, by gaining insights in conversation trends over a specified period, to the extent these interests are not outweighed by the rights and freedoms of the data subjects concerned.

To the extent that we will need to collect regular or sensitive data for safety surveillance and reporting purposes, as mentioned above, the lawful basis for that processing is that:

the processing is necessary for compliance with a legal obligation to which the data controller (Alnylam) is subject;
the processing relates to personal data which are manifestly made public by the data subject; and
the processing is necessary for reasons of public interest in the area of public health, such as protecting against serious cross-border threats to health or ensuring high standards of quality and safety of health care and of medicinal products or medical devices, on the basis of Union or Member State law which provides for suitable and specific measures to safeguard the rights and freedoms of the data subject, in particular professional secrecy;

Purpose(s) of Processing

Alnylam processes Personal Data for the following purposes:

To identify and assess what is being said about Alnylam and its products and services on publicly accessible social media content to understand sentiment, intent, mood and market trends and the public’s needs and thereby improve our services and take into account the needs of the general public in our communications; and
To measure the effectiveness of Alnylam’s communications strategy.

Alnylam shall use the Personal Data only for the purposes specified in this section.

Recipients of Your Personal Data

Any Personal Data retrieved from media monitoring tools will be retained and stored on the external service provider’s IT systems and applications and will not be downloaded into Alnylam IT systems.

Insight reports and/or Personal Data may be shared internally with other Alnylam affiliates worldwide. Insight reports will be anonymized and will not capture any personal data gathered from media monitoring. Anonymized reports will be stored on a secure collaborative platform which is owned and managed by our external service provider.

Where insight reports and/or personal data may be shared with recipients located in third countries, Alnylam will ensure that all appropriate safeguards are in place and that all applicable laws and regulations are complied with in connection with such cross-border data transfers; in the absence of any adequacy decision, Alnylam relies, in particular, on the execution of the appropriate EU standard contractual clauses for data controllers and processors, as adopted by the European Commission, to ensure an adequate or substantially equivalent level of data protection when transferring personal data to other member companies of the Alnylam Group (including in the United States and the United Kingdom), as well as with respect to data transfers made to service providers, acting on behalf of and for Alnylam and other Alnylam partners located in third countries. In adopting the appropriate safeguards, Alnylam will also implement any supplementary measures that may be required by legislative or regulatory authorities, or that may be deemed necessary, to ensure an adequate or substantially equivalent level of data protection with respect to the transferred data, taking into account the factual circumstances of the transfer in question.

Retention

Personal data will only be stored as long as necessary to fulfil the purposes and respective obligations related to such data, for which it was collected, subject to local laws and regulations and legitimate business needs in accordance with Alnylam internal policies.

The external service provider will retain identifiable personal information that is downloaded from search monitoring tools in order to compile the insight reports.

Data gathered by our external service provider will be stored according to the service provider’s retention policies and also to Alnylam’s policies and documented instructions.

All downloaded identifiable data will be reviewed on an annual basis and deleted if no longer serves the original purpose of collection and processing. Τhe external provider will delete the results of the searches, as well as automatic backups after the end of the respective contract with Alnylam.

Produced insight reports will not include any personal data. Insight reports will be stored for a maximum of five years and will then be destroyed/deleted.

Automated decision-making

Data may have been subject to automated decision-making by the media monitoring tools to identify it as falling within a particular search description.

How Alnylam protects your Personal Data

Alnylam will take reasonable and appropriate physical, administrative and technical safeguards to protect the processing of the Personal Data from loss, misuse, unauthorized access, disclosure, alteration or destruction. In this perspective, the data may be used only by Alnylam’s personnel who need it because of their job or hierarchical position, with confidentiality obligations, which have been assigned a specific role and which have been given appropriate operating instructions.

Your Rights and how to exercise them

Individuals in the EU have certain data subject rights which may be subject to limitations and/or restrictions:

You have the right to object to the processing of your personal data.
You have the right to request information about how your personal data is processed, and to request a copy of that personal data.
You have the right to request that any inaccuracies in your personal data are rectified without delay.
You have the right to request that any incomplete personal data is completed, including by means of a supplementary statement.
You have the right to request that your personal data is erased if there is no longer a justification for them to be processed.
You have the right in certain circumstances (for example, where accuracy is contested) to request that the processing of your personal data is restricted.
You have the right to object to the processing of your personal data where it is processed for direct marketing purposes.

If you wish to exercise one of the above-mentioned rights, please refer to the “How to Reach Us” section below.

If you do not receive a (timely) response from Alnylam or if you are not satisfied with our response to you, you also have the right to lodge a complaint about the processing of your Personal Data with the appropriate national data protection supervisory authority; a list of the national data protection supervisory authorities in Europe can be found here: https://edpb.europa.eu/about-edpb/board/members_en

Further information and Contact details

For additional information on how Alnylam collects and processes your Personal Data please visit our Privacy website available here: https://alnylampolicies.com/

The contact details of the data controller are:
Alnylam Switzerland GmbH:
Grafenauweg 4, 6300 Zug, Switzerland
info@alnylam.com
+41 41 561 3500

To exercise your rights or to request additional information, you may contact our EU Privacy Office and Data Protection Officer by email at eudataprivacy@alnylam.com or in writing at the address below:

ALNYLAM UK LTD.
Braywick Gate
Braywick Rd
Maidenhead
SL6 1DA, UK
Tel: +44 (0) 1255 444 400

EU Privacy Office:
ALNYLAM Switzerland GmbH
Attention: Legal department
Address: Grafenauweg 4,6300 Zug, Switzerland
Tel: +41 41 561 3500

Please note that you can also fill out this data subject request form.

Complaints

If you consider that your personal data has been misused or mishandled, you may also submit a complaint to the Federal Data Protection and Information Commissioner (FDPIC); the FDPIC can be contacted at:

Federal Data Protection and Information Commissioner:
Feldeggweg 1, CH – 3003, Berne
+41 (0)58 462 43 95
info@edoeb.admin.ch

Any complaint to the Federal Data Protection and Information Commissioner is without prejudice to your right to seek redress through the courts.

You may also contact, if you are an EU/EEA resident, the competent data protection authority of your country of residence or place of work; Information and contact details of the competent authorities is available on the EDPB’s website at Members | European Data Protection Board (europa.eu).